Development Assesment

Janelle is coming to 3 next month, mummy gets very worries of her development. Her classmates are having much more improvement than Janelle. and janelle had one huge problem, is that she cant sit still and listen in class. If this she cant do it, how can i sent her to mainstream?? So I would like to solve this problem, and had been seeing KKH OT and School OT for coming to 1.5 years, no improvement with her at all, so now i started to looked out.

Referred to Tr Sanjeey, a senior OT from ex-rainbow who had sees many special needs children. He did a developmental assessment for janelle and a few points and goals he set for Janelle:

• Although Janelle is 3 and can walk, but her development is at about 8 months... she doesnt walk freely.. she will locked herself by facing down to walk.. this gives her the control of herself not falling... but she dont look left and right or even front.. that's why she tends to trip and fall or knock into some things.


• Her truck muscles seem to be very weak, hence she cant focus while sitting down.


• She needs to do things with a meaning.. She can do it... Now activates to her are meaningless hence she is not learning and progressing.


• Need to get her seizure controlled, else we will be going round the cycle.. today she can do it.. after seizure... she cant do it again..

Tr Sanjeey mentioned that he will start sourcing for toys for janelle... toys where she will enjoyed and learn something... and will start with her next weeks and need something that she can had a huge progress to catch up.

All the above he mentioned, it's all very challenging to me. after the assessment, i got burned out, feeling very low and depressed. Asking myself what else i can do.. how can i do better??

Next day we had an OT at KKH, i flagged out my concern with the therapist. and then she did a reviewed with janelle and restructured the program. I dont like KKH OT as they dont set a goal for janelle... they are doing the same thing each session without assessing much on her... even there is no improvement, nothing changed till parents flagged out. Will be dropping KKH OT.

Met GH, Janelle's PT outside the OT room.. she asked me how is Janelle.. I gave her a sigh and when we talked, i have no ideas why my tear just flowed down infront of her... so embarrassing.. She wanted to meet me over the weekend to catch up, but i know she has 2 kids to take care, so didnt want to disturb her free time. anyway, thanks GH!!

After the OT, we had doctor reviewed on the same day. The same old things.. "let's monitor and change drugs.", i didnt asked much and just returned with a smile and "Ok".. just before i stepped out of the room, dr asked if i need parents support, he can help me to arrange... The OS in me is that "as long as you can help janelle... that's already helping me"... i shaked my head and walked out the door with tears around my eyes.

This strong mommy no longer strong.... these 2 days i tried to escape from janelle.. have been going to into office to take some time off away.. so that when i returned home, i have more energy and appreciate every minutes with her. i really dont know what's the next step i can try... told me hus, let's try TCM... but his silent had tell me off. what else??

God, you gave me pretty janelle but you forget to give me her health.. can you return it to me... I just want her to be a normal child who goes to school like normal kids.. play, talk and run around like them...