Updates of Janelle

KKH doctor recommended me new drug - Clobazam - she mentioned that although this drug is new in the market (about 10 years) compared to the drugs Janelle had been taking (100 to 80 years old in the market), research showed it has better tolerated and results with Janelle kind of epilepsy. But cos the drugs is not in the market for that longs, hence they cant tell what is the super long term effect. And ofcos it might not 100% workable on her, all drugs has to trial an error as it will react very different from others. I didnt commit to change the drug immediately, as my mind was not working that well on that day.

Today, seeing janelle having fits again, and read thru her epilepsy diary, it had been everyday... yes!! everyday after TTSH doctor asked me to drop Nitrazepam for 3 weeks and asked to put back again for 2 weeks now, it's tells me that "hey, mummy, you need to do something, what is the point keep doing the same things that it doesnt help at all"... and am thinking what is the harm to let her trial on newer drugs. I have 50% of chance that this newer drugs works on her since the old traditional drugs dont. "should i take the risk?" is the question running in my mind now.

Printed out some research papers on this drugs, will talk to kogan when he is back from work. My heart tells me to go ahead to try this drug, and it will works for her.... ** keeping my fingers crossed on this**our next appt is on 31 Aug, we will need to make a discision then.