Janelle's seizure still cannot be controlled by medication.. she is still having cluster of 5 to 6 fits every 3 days and last fit was on sunday morning, hence dr chan suggest to up her dosage again. Cabamazepine from 5ml to 6ml + Nitrazepine from 1/2 tablet to 1 tablet. And next thursday will need to return to KKH for blood test, to check her blood contains of the drugs level. Dr chan adviced that if by next appointment, these 2 drugs still cant control her seizure, we will proceed to change drugs again. our aims is to have seizure-less, one or two short seizure is acceptable.
Dr Chan did a quick assessment for Janelle, and he mentioned that it is worth to go for Physiotherapy for their assessment and advice. Janelle still have not able to sit on her own (7mths), not yet reach out for things(6mths), and she is coming to 9 months now. I have booked an appt with the rehad center at kkh - next thursday after her blood test. haiz, this assessment will cost about $200+ as 3 physiotherapy will come in for assessment - Speech and language, Physio, Play
God, please bless my girl.
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