Speech Therapy

29th April 2010, Wednesday

We skipped the hydro-therapy and went for one to one speech therapy session. Teacher Dino monitored Janelle's feeding skill and had came out a home plan for her.

Plan, to control her drooling:
1. Massage: help to simulate the jaw muscle
2. Tools: to get some tools for her to chew more
3. feeding: feed her at the side of the spoon, and wait for her to take the initial to bring the food into the mouth
4. food: to give her more chewing food likes baby bites, bread

My poor niece

23th April 2010, Saturday

Today my elder niece lied to the family and didnt go for tution. Guessed the teacher complainted to her mom, so once she reached home she was canned by her mom.

When she came down, I saw all the cane marks on her back, her arms and her legs.. I think sil had done a bit too much. Yes, I agreed that at times canning will help. But I think she did a bit too much this much. Afterall this is first time and i believe there must be a reason she did that, shouldn't be asking the reason of her fear to go to tution instead of canning her like a mad person.

I see her like that always heart pain. Haiz.

-- Post From My iPhone

epilepsy surgery

Spend another morning reading more on the epilepsy operation:

http://news.bbc.co.uk/2/hi/health/4719181.stm

http://www.med.nyu.edu/neurosurgery/epilepsy/conditions/benefits.html

http://abcnews.go.com/Health/MindMoodNews/story?id=7885128&page=1

let me list down some points for my consideration:

risk/facts:

• "The scariest thing when you are operating on the brain is when you get bleeding that you can't control. Sometimes it gets very hairy."
• There is also a risk that nearby brain structures that control functions such as speech and vision will be damaged.
• developed a blood clot after the surgery
• the extent of tissue that had to be removed, she has lost some peripheral vision and can no longer see things clearly to her right.
• Epilepsy surgery is not considered unless seizures are not controlled with medications. The surgery has a likelihood of completely controlling the seizures from 50% to 95% of the time depending on the epilepsy syndrome treated and the operation performed.
• The most important risk of epilepsy surgery is nonreversible injury to the brain due to intracranial hemorrhage (bleeding) or stroke. Infection is one of the most common complications, but unlike infection, stroke or hemorrhage most often leaves the patient with a neurological deficit that may be disabling. This complication occurs in about 1% of the craniotomies performed.
• Though an individual seizure by itself is not very dangerous, recurrent seizures do represent important accumulated risks over time. If the summed risk of recurrent seizures over 5 or 10 years is considered, then the risk to serious injury resulting in permanent disability is probably well over 1% or 2%, and for some people with epilepsy this is even higher.
• Temporal lobe epilepsy is the most thoroughly understood epilepsy syndrome. One kind of temporal lobe epilepsy called mesial temporal lobe epilepsy is the model for epilepsy surgery. People with medically refractory epilepsy who have mesial temporal lobe epilepsy can be offered up to a 95% chance of complete seizure control with a single surgical procedure called an anterior mesial temporal lobectomy (or sometimes referred to as amygdala-hippocampectomy.)
• The most common problem once discharged from the hospital is wound infection.
• "Sometimes, after general anesthetic, people have this honeymoon period where seizures go away. But then they come back,"

Today's janelle class

23rd April 2010, Friday

Every Friday janelle will have soft play, one of her fav class:







And janelle today learn how to move the bike. She will stand up and run forward to move the bike. Smart little girl.







-- Post From My iPhone

Breakfast for Janelle

21st April 2010, Wednesday

This morning, my maid woke me up at 7 to cook breakfast from Janelle. She says no breakfast already. So mummy woke up n cook pancake for her.

And the balance I settled it and here's my breakfast.





-- Post From My iPhone

Speech Therapy

21st April 2010, Wednesday

Today Janelle had a special session with the speech therapy in her school. She was reviewed on her feeding and here's the comments from ST:

1. Janelle has very weak jaw muscle, hence she dont suck or chew
2. Janelle has very bad sitting position. Cant be stable

Things to do,

1. stop the ikea high chair, that's no good for Janelle cos there isn't foot rest hence she will keep her weight to one side.

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