Another Option: Ketogenic Diet

Janelle's last review with Dr, he proposed us to go for Ketogenic Diet as Janelle seizure doesnt seems to response well for serval different seizure medicine. And this month, we met up with Dr and Dietary to understand what is ketogenic diet.

The ketogenic diet is a special high-fat, low-carbohydrate diet that helps to control seizures in some people with epilepsy. It is prescribed by a physician and carefully monitored by a dietitian. It is more strict, with calorie, fluid, and protein measurement. Blood Test and Urine Test twice a day to ensure the sugar level and "keto" is at a good level. The intention of this diet to allows energy used are via the fat and not sugar. This is not a healthy diet at all and it will impact the growth. The dietitian gave me a sample menu on what's ketogenic diet, cut Janelle's current intake to half (half a bread, half portion of her rice and 30g of meat for lunch and dinner, and drink MCT oil and eat oily food). Drop the milk intake and drop the one snack at 4pm. As mentioned, this is not a healthy diet, so it is seriously lack of all the vitamins and minerals, so dietitian mentioned that hence they consitance need to do further blood test and will recommend vitamin and mineral supplements. If goes off the diet for even one meal, it may lose its good effect. So it is very important to stick with the diet as prescribed. Imaging now Janelle is taking this much and she is so skinny, to cut the portion into more than half.. i think my janelle dont talk about growth, she will be very miserable lack of nutriants and go on hunger. Is this a wise choice? Sucessfully rate is 30%. Min 6 months to determine if this is helpful with Janelle... Max 3 years.

I recalled that we met a girl who seizure was worsen after on this diet. But doctor dont agreed when i mentioned it to him. He insisted that the girl seizure worsen is not becos of this diet with the support of research papers in london. But he explainted that is because of her own seizure pattern that got worst. :(

When I were driving home, when i think of the blood test for sugar twice a day, my heart break.. and when i think of half of her meals, dropped milk, dropped snack... and she will go on hunger, my broken heart sinked and my tears were uncontrollable rolling down. Now is her active stage and we had put in so much afford to build her strength to climb, to wallk, and with this diet does that means that all our affort will be go into drain and she will becomes sluggish?

30% sucessfully rate? Should I let her try? go on hunger? taking blood from her 10 little fingers twice a day? lack with vitamins and nutriants .... had been in my mind these few nights. I feel like slapping the doctor, years ago, when janelle is not yet into solid and she eats what we gave, i asked for going on ketogenic diet, but doctor rejected. And now, when janelle grow up and into solid, and will be hard to control what's goes into the mouth then he proposed this.