normal is far reach???

06 May 2010, Thur

Today is quite a emotional day for me..

Afternoon, we went to talk to Janelle's doctor.. here's the questions we asked:

1. is janelle fits into the condition for epilepsy surgery

Ans: we need further tests of MRI, EEG for a couple of months before we can pinpoint the impacted area and decide whether if janelle fits into the condition.

2. what is the successful rate of this surgery

Ans: we will only be able to tell more if we managed to pinpoint any impacted area

3. how many children had undergo this surgery

Ans: not many

4. if janelle undergoes the surgery, is normal we are expecting.. can janelle goes back to normal school..

Ans: for janelle, normal is far reach.. now she is old enough that she uses both side of brian for functional. hence if part of the brian removed, she will be weak in one side. and as of now, her fits are not controlled and we see obvious delayed in her developmental and if she wants to go to normal school, the chances is very slim.

after this question.. my tears already running down.. and my mind is not working anymore.. the words "normal is far reach".. "chances for normal school is very slim" are running in my mind... i just cant continue...

5. so what's the plan for janelle now?

Ans: we will need to change drugs again since the drugs are not working for her... meanwhile will arrange her to admit to hospital to undergo video EEG to determine what type of seizure she is having.

I'm lost now.. dont know what i can do.. i asked hub whether should we consider to change a doctor.. he rejected, he scare the history of NNI will repeated again...

I really lost, hence went to temple and ask god... asked for direction..

"the best is stay present"

i believe what i need now is to stay positive and continue to work hard for Janelle.. and hope should be always stays.. my goal is to put her into normal school..

加油加油加油！！！