16th June 2010, Wednesday..
So sick of work.. am so looking forward for my upcoming trip...
not the trip into dalian office but is the trip to shopping Paradise and Disneyland..
but on the other hand, i'm kind of worrying for my jx.. can hub take care of her?? will she miss mummy?? can they handle her well?? who to plan her meals?? ai yo.. dont think so much.. now is daddy time to take care of jx...
Wednesday, June 16, 2010
Wedding dinner
My first wedding dinner of 2010 and more to comes...
Wah, we stunned when I saw her, hardly recognize her. She can be so pretty after her makeup n dress up... Always see her in jean :)
Years later... We both are mummies now...
Special guest from hk :)
The 4 "beauty" in PD...
And with Our pretty bride of the day...
-- Post From My iPhone
Wah, we stunned when I saw her, hardly recognize her. She can be so pretty after her makeup n dress up... Always see her in jean :)
Years later... We both are mummies now...
Special guest from hk :)
The 4 "beauty" in PD...
And with Our pretty bride of the day...
-- Post From My iPhone
Tuesday, June 15, 2010
Drinking milk
Finally she is willing to hold her own milk bottle :) it's take me to 21mths to train her... Good job sweet sweet.
-- Post From My iPhone
-- Post From My iPhone
Tuesday, June 8, 2010
Shopping weekend
6th June 2010, Sunday
I had a great weekend... deposited my girl and maid with my mom and went shopping - xue ping when husband not around... if he is around, he will says should buy this and that.. when you reached there he will ask "if this necessary??" or "buy the cheapest".. shopping with him will always returned with empty handed or full of grocery.
got my pressure cooker, a luggage for my husband, clothes for myself and janelle and total damage was $500 within 4 hours..
I had a great weekend... deposited my girl and maid with my mom and went shopping - xue ping when husband not around... if he is around, he will says should buy this and that.. when you reached there he will ask "if this necessary??" or "buy the cheapest".. shopping with him will always returned with empty handed or full of grocery.
got my pressure cooker, a luggage for my husband, clothes for myself and janelle and total damage was $500 within 4 hours..
Friday, June 4, 2010
Seek for 2nd opinion
04 June 2010, Friday..
Upon discharge on 22nd May, New drugs - Zonisamide was introduced. According to doctor, this is kind of relatively new drugs and it is imported from Japan. It had not been listed in Singapore subsided drugs, hence it is quite costly. One small little pill cost $10.50.
After Zonisamide was introduced, she had seizures-free for a week. The first seizure she had was on 23rd May, when she is having fever. Then one week of seizure free and no idea why, this week jx had been having seizures almost every night 31stMay, 1stJune, 3rdJune, 4thJune.. and the seizure seems to last longer abt 10 min which it scared me off. Suddenly, there is just this unknown fear in my bottom of heart that doesnt feel too good. And not sure why, this morning she starts to have fever.. haiz.. mummy's nightmare.. have not been sleeping well at all..
On 2n June 2010, i spend a night to do some research online and decided to seek for another 2nd opinion as we had been with KKH for a year, and there is no improvement. Called up SGH, but they dont take in young toddler, they referred to KKH. Called up NUH and they have a team of PD Neurology and make an appointment with them on 4June.
yesterday, saw there is a snack preview on TV for the advance in science regarding about epilepsy. The preview shows that there is this child who had been having fits, and by the time they open the brain, half of the brain cells had been damage. if you are interested to know what i had been through with Janelle, you can caught the show advance with science, channel U, Wed 930pm. **Joyce, You DONT watch...** My fear starts running wild in me.. then sil called to check on jx. when talking to her, i cant controlled myself and breakdown crying over the phone.very kind of her, keep telling me to accept what jx is, and no matter how jx becomes everyone in this family will love her.
This morning, she came over to my place saying that she want to accompany me to NUH. Went off during lunch time to meet NUH PD Neurology. According to her, surgery is out for jx as her her fits pattern i descript for her is generalize seizure where more than one point of her brain is effected. And there is no way to remove more than one point of brain cells. She will reckon to continue to trail and error on the drugs.. and the other option will be controlling diet where it goes high fats and sugar free. feeling like back to square one, helpless, distress and clueless on my next steps.
i gave myself 2 choices..
1> give up and accept what the doctor gives, accept jx and face the "SPECIAL" child
2> never give up, continue to see other specialities, might has just the one for jx..
In Mummy's diary to her child, doesn't have the words "GIVE UP" in the dictionary. everyone can choose to give up something, but a mummy will never give up on her own child. So am I.. I will continue to seek for 2nd opinion till i find someone who can tell me he is confident to return Janelle health to me.
Upon discharge on 22nd May, New drugs - Zonisamide was introduced. According to doctor, this is kind of relatively new drugs and it is imported from Japan. It had not been listed in Singapore subsided drugs, hence it is quite costly. One small little pill cost $10.50.
After Zonisamide was introduced, she had seizures-free for a week. The first seizure she had was on 23rd May, when she is having fever. Then one week of seizure free and no idea why, this week jx had been having seizures almost every night 31stMay, 1stJune, 3rdJune, 4thJune.. and the seizure seems to last longer abt 10 min which it scared me off. Suddenly, there is just this unknown fear in my bottom of heart that doesnt feel too good. And not sure why, this morning she starts to have fever.. haiz.. mummy's nightmare.. have not been sleeping well at all..
On 2n June 2010, i spend a night to do some research online and decided to seek for another 2nd opinion as we had been with KKH for a year, and there is no improvement. Called up SGH, but they dont take in young toddler, they referred to KKH. Called up NUH and they have a team of PD Neurology and make an appointment with them on 4June.
yesterday, saw there is a snack preview on TV for the advance in science regarding about epilepsy. The preview shows that there is this child who had been having fits, and by the time they open the brain, half of the brain cells had been damage. if you are interested to know what i had been through with Janelle, you can caught the show advance with science, channel U, Wed 930pm. **Joyce, You DONT watch...** My fear starts running wild in me.. then sil called to check on jx. when talking to her, i cant controlled myself and breakdown crying over the phone.very kind of her, keep telling me to accept what jx is, and no matter how jx becomes everyone in this family will love her.
This morning, she came over to my place saying that she want to accompany me to NUH. Went off during lunch time to meet NUH PD Neurology. According to her, surgery is out for jx as her her fits pattern i descript for her is generalize seizure where more than one point of her brain is effected. And there is no way to remove more than one point of brain cells. She will reckon to continue to trail and error on the drugs.. and the other option will be controlling diet where it goes high fats and sugar free. feeling like back to square one, helpless, distress and clueless on my next steps.
i gave myself 2 choices..
1> give up and accept what the doctor gives, accept jx and face the "SPECIAL" child
2> never give up, continue to see other specialities, might has just the one for jx..
In Mummy's diary to her child, doesn't have the words "GIVE UP" in the dictionary. everyone can choose to give up something, but a mummy will never give up on her own child. So am I.. I will continue to seek for 2nd opinion till i find someone who can tell me he is confident to return Janelle health to me.
Wednesday, June 2, 2010
Facing the fear
Took Janelle together to face the fear of starting the car again afraid one night rest.
Yes!! Start the engine with no problem.. Haa.. Hope it don't fail me again.
-- Post From My iPhone
Yes!! Start the engine with no problem.. Haa.. Hope it don't fail me again.
-- Post From My iPhone
What a day!!
02 June 2010, Tuesday
Took an hour timeoff from work to meet my bestie for "sex and the city 2" and also to collect my bro's jay concert ticket.
went to jess's place to help her clear some rubbish before we head down for movie. we were late and was kind of rush.. the girls were very stressed when i can't snatch a carpark lot... haaaa.. we were 15 min late and missed the starts...
after the movie, the counter for the concert tickets was closed... end up, didnt managed to collect the tickets.. errrr... my bro cant wait for it.
when approaching to my car, i saw the hazard lights was blinging.. have a very wrong feeling...i did a quick check at my car make sure was not hit by any cars. when i put in the keys, i cant get my car started... i was lost.. dont know what to do.. quickly call for help, but none of my brothers nor friends picked up my call.. damn stressup... A was with me, she tried to call her brother, but also didnt pick up.. my goodness... A helped me to stop some approaching cars if they have the jump start wires, but none of them have it. lucky J was still around and she called for rescue from her dad... thanks god.. uncle had jump start wires in his car and he came down for us.. goodness seek... i dont like that feeling, lucky A was with me else i might seat down and cry at the carpark.. haha... my very first experience with car running out of batteries.
we wait for uncle for abt 20min, and he did less than 5min to jump start the car.. and the car get started. :) was so glad.. :P i fetch A home, and heads back to my mama house to pick up jx.. i dont even dare to switch off the engine while picking up jx as i afraid i cant start the car after that.. and return to punggol and let jx rest..
when driving back home, i realised that am very blessed with these 2 bestie.. 11years of friendship, soul mates 真不是盖的。
Took an hour timeoff from work to meet my bestie for "sex and the city 2" and also to collect my bro's jay concert ticket.
went to jess's place to help her clear some rubbish before we head down for movie. we were late and was kind of rush.. the girls were very stressed when i can't snatch a carpark lot... haaaa.. we were 15 min late and missed the starts...
after the movie, the counter for the concert tickets was closed... end up, didnt managed to collect the tickets.. errrr... my bro cant wait for it.
when approaching to my car, i saw the hazard lights was blinging.. have a very wrong feeling...i did a quick check at my car make sure was not hit by any cars. when i put in the keys, i cant get my car started... i was lost.. dont know what to do.. quickly call for help, but none of my brothers nor friends picked up my call.. damn stressup... A was with me, she tried to call her brother, but also didnt pick up.. my goodness... A helped me to stop some approaching cars if they have the jump start wires, but none of them have it. lucky J was still around and she called for rescue from her dad... thanks god.. uncle had jump start wires in his car and he came down for us.. goodness seek... i dont like that feeling, lucky A was with me else i might seat down and cry at the carpark.. haha... my very first experience with car running out of batteries.
we wait for uncle for abt 20min, and he did less than 5min to jump start the car.. and the car get started. :) was so glad.. :P i fetch A home, and heads back to my mama house to pick up jx.. i dont even dare to switch off the engine while picking up jx as i afraid i cant start the car after that.. and return to punggol and let jx rest..
when driving back home, i realised that am very blessed with these 2 bestie.. 11years of friendship, soul mates 真不是盖的。
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